What to know
This table shows data on general patient demographics and clinical characteristics for people with platelet disorders. To view this table in Excel, download the file above the table.
Table 5
HTC Population Profile Patient Characteristics, Platelet Disorders, Data Reported from 1/1/2012 through 3/31/2024
Download the table as an Excel file.
| Bernard Soulier syndrome | Glanzmann thrombasthenia | Gray platelet syndrome | Hermansky-Pudlak syndrome | Platelet function disorder, hereditary (nonspecific) | Platelet release defect | Platelet storage pool disease | Thrombocytopenia, hereditary | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| # | (%) | # | (%) | # | (%) | # | (%) | # | (%) | # | (%) | # | (%) | # | (%) | ||
| # of patients | 117 | (100) | 373 | (100) | 21 | (100) | 153 | (100) | 4767 | (100) | 60 | (100) | 4045 | (100) | 1225 | (100) | |
| Age (years) | <2 | * | * | * | * | * | * | * | * | 58 | (1) | * | * | 46 | (1) | 49 | (4) |
| 2–10 | 29 | (25) | 63 | (17) | * | * | 43 | (28) | 786 | (16) | * | * | 759 | (19) | 172 | (14) | |
| 11–19 | 35 | (30) | 104 | (28) | 11 | (52) | 43 | (28) | 1664 | (35) | 32 | (53) | 1679 | (42) | 305 | (25) | |
| 20–44 | 36 | (31) | 129 | (35) | * | * | 40 | (26) | 1360 | (29) | 9 | (15) | 1096 | (27) | 307 | (25) | |
| 45–64 | 12 | (10) | 50 | (13) | * | * | 16 | (10) | 529 | (11) | * | * | 322 | (8) | 216 | (18) | |
| 65+ | * | * | * | * | * | * | * | * | 370 | (8) | * | * | 143 | (4) | 176 | (14) | |
| Sex† | Male | 58 | (50) | 177 | (47) | 8 | (38) | 74 | (48) | 1714 | (36) | 27 | (45) | 1317 | (33) | 587 | (48) |
| Female | 59 | (50) | 196 | (53) | 13 | (62) | 79 | (52) | 3053 | (64) | 33 | (55) | 2728 | (67) | 638 | (52) | |
| Ethnicity | Hispanic, Latino/a, or Spanish origin | 21 | (18) | 89 | (24) | * | * | 91 | (59) | 750 | (16) | * | * | 326 | (8) | 309 | (25) |
| Not Hispanic, Latino/a, or Spanish origin | 90 | (77) | 272 | (73) | 13 | (62) | 55 | (36) | 3875 | (81) | 42 | (70) | 3670 | (91) | 848 | (69) | |
| Unknown | 6 | (5) | 12 | (3) | * | * | 7 | (5) | 142 | (3) | * | * | 49 | (1) | 68 | (6) | |
| Race | American Indian/Alaska Native | * | * | * | * | * | * | * | * | 28 | (1) | * | * | * | * | 12 | (1) |
| Asian | * | * | 39 | (10) | * | * | 8 | (5) | 189 | (4) | * | * | 54 | (1) | 39 | (3) | |
| Black or African American | 12 | (10) | 59 | (16) | * | * | * | * | 468 | (10) | * | * | 472 | (12) | 149 | (12) | |
| Native Hawaiian or other Pacific Islander | * | * | * | * | * | * | * | * | 17 | (0) | * | * | * | * | * | * | |
| White | 91 | (78) | 244 | (65) | 13 | (62) | 100 | (65) | 3726 | (78) | 52 | (87) | 3315 | (82) | 852 | (70) | |
| More than one of these | * | * | * | * | * | * | * | * | 61 | (1) | * | * | * | * | * | * | |
| Unknown | * | * | * | * | * | * | 35 | (23) | 278 | (6) | * | * | 96 | (2) | 157 | (13) | |
| Insurance Status | Insured | 115 | (98) | 359 | (96) | 20 | (95) | 148 | (97) | 4695 | (98) | 58 | (97) | 3995 | (99) | 1188 | (97) |
| Uninsured | * | * | 8 | (2) | * | * | * | * | 39 | (1) | * | * | 32 | (1) | 29 | (2) | |
| Unknown | * | * | 6 | (2) | * | * | * | * | 33 | (1) | * | * | 18 | (0) | 8 | (1) | |
| History of HCV infection | Yes | * | * | 19 | (5) | * | * | * | * | 23 | (0) | * | * | 35 | (1) | 23 | (2) |
| No | 95 | (81) | 305 | (82) | 16 | (76) | 128 | (84) | 3570 | (75) | 34 | (57) | 3021 | (75) | 850 | (69) | |
| Unknown | * | * | 49 | (13) | * | * | * | * | 1174 | (25) | * | * | 989 | (24) | 352 | (29) | |
| History of HIV infection | Yes | * | * | * | * | * | * | * | * | 9 | (0) | * | * | 16 | (0) | 12 | (1) |
| No | 99 | (85) | 323 | (87) | 16 | (76) | 126 | (82) | 3583 | (75) | 34 | (57) | 3036 | (75) | 861 | (70) | |
| Unknown | * | * | * | * | * | * | * | * | 1175 | (25) | * | * | 993 | (25) | 352 | (29) | |
*Counts greater than zero but less than five have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.