Scientific Articles about Sickle Cell Disease

Articles about SCD

2024

The Prevalence of Sickle Cell Disease in Colorado and Methodologies of the Colorado Sickle Cell Data Collection Program: Public Health Surveillance Study. JMIR Public Health Surveill. 2024;10:e64995. Miller JI, Hassell KL, Kellar-Guenther Y, Quesada S, West R, Sontag M.

Immunization adherence among children with sickle cell disease and sickle cell trait: Results of a population-based study. Pediatr Blood Cancer. 2024;71(7):e31042. Shi JS, Sutaria A, Lakshmanan S, Attell B, Zhou M, Tang A, Eckman J, Snyder A.

COVID-19 Immunization Coverage Among People With Sickle Cell Disease. JAMA Netw Open. 2024;7(1):e2351618. Peng HK, Dombkowski KJ, Plegue MA, Latta K, Malosh R, Creary MS, Reeves SL.

Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together. Prog Community Health Partnersh. 2024;18(3):371-380. Young AJ, Maresh A, Pope S, Blaylark R, Lakshmanan S, Stephens L, Aderojou R, Meier E, Gibson G, Okolo A, Cromartie S, Coker N, Paulukonis S, Fields J, Kaur M, Desai J.

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CDC’s Sickle Cell Data Collection Program builds bridges between community-based organizations and scientists. What did we learn from these partnerships?

-Priorities trust-building

-Establish shared goals and define expectations

-Leverage strengths for mutual benefit

-Incorporate community voices from the beginning

-Foster open communication

-Seek out diverse partnerships and perspectives

Consider how these lessons can help your program build stronger partnerships.

Young AJ, Maresh A, Pope S, et al. Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together. Prog Community Health Partnersh. 2024;18(3):371-380.

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National Quality Indicators in Pediatric Sickle Cell Anemia. Pediatrics. 2024 Apr 1;153(4):e2022060804. Anderson AT, Mack WJ, Horiuchi SS, Paulukonis S, Zhou M, Snyder AB, Doctor JN, Kipke M, Coates T, Freed G.

Opioid Use After First Opioid Prescription in Children With Sickle Cell Disease. JAMA Pediatr. 2024;178(4):408-410. Snyder AB, Zhou M, Attell BK, Cohen LL, Carter S, Bock F, Dampier C.

Examining community-level social vulnerability and emergency department use for people living with sickle cell disease in Michigan. Pediatr Blood Cancer. 2024;e31225. Swallow J, Latta K, Plegue M, Peng HK, Tipirneni R, Smith D, Lê-Scherban F, Dombkowski KJ, Reeves SL.

Acute care utilization among individuals with sickle cell disease and related cardiopulmonary and renal complications.
PLoS One. 2024;19(4):e0297469. Singh A, Brousseau DC, Dasgupta M, Shet AS, Field JJ, Brandow AM.

Assessing patterns of telehealth use among people with sickle cell disease enrolled in Medicaid during the start of the COVID-19 pandemic. Telemed J E Health. 2024. Reeves SL, Plegue M, Patel PN, Paulukonis ST, Horiuchi SS, Zhou M, Attell BK, Pace BS, Snyder AB, Plaxco AP, Mukhopadhyay A, Smeltzer MP, Ellimootil CS, Hulihan M.

Emergency department utilization before and during the COVID-19 pandemic among individuals with sickle cell disease. BMC Emerg Med. 2024;24(1):134. Attell BK, Plaxco AP, Zhou M, Valle J, Reeves SL, Patel PN, Latta K, Smeltzer MP, Snyder AB.

Prevalence, mortality, and access to care for chronic kidney disease in Medicaid-enrolled adults with sickle cell disease in California: Retrospective cohort study. JMIR Public Health Surveill. 2024;10:e57290. Valle J, Lebensburger JD, Garimella PS, Gopal S.

Emergency department 30-day emergency department revisits among people with sickle cell disease: variations in characteristics. Pediatr Blood Cancer. 2024;e31188. Rushing M, Horiuchi S, Zhou M, Kavanagh PL, Reeves SL, Snyder A, Paulukonis S.

Medicaid coverage in early childhood for children with sickle cell disease. JAMA Netw Open. 2024;7(7):e2421491. Horiuchi SS, Reeves SL, Plaxco AP, Peng HK, Zhou M, Kayle M, Hulihan M.

Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability — Sickle Cell Data Collection Program, 11 States, 2016–2020.
MMWR Morb Mortal Wkly Rep 2024;73:248–254. Kayle M, Blewer AL, Pan W, et al.

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Children with sickle cell disease (SCD) have complex health needs that benefit from ongoing specialized health care

2 of 3 newborns with SCD are born to mothers who live in U.S. counties with high levels of social vulnerability* Social vulnerability includes factors such as poverty, lack of vehicle access, and crowded housing

Communities can provide support by:

-Developing medical transportation reimbursement programs

-Developing innovative comprehensive care models

*State newborn screening program records, Sickle Cell Data Collection Program, 2016-2020

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March 28, 2024

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COVID-19 immunization coverage among people with sickle cell disease.
JAMA Netw Open. 2024;7(1):e2351618. Peng HK, Dombkowski KJ, Plegue MA, Latta K, Malosh R, Creary MS, Reeves SL.

2023

Characteristics of Emergency Department Visits Made by Individuals With Sickle Cell Disease in the U.S., 1999-2020. AJPM Focus. 2023;3(1):100158. Attell BK, Barrett PM, Pace BS, McLemore ML, McGee BT, Oshe R, DiGirolamo AM, Cohen LL, Snyder AB.

Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program's Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study. JMIR Public Health Surveill. 2023;9:e42816. Singh A, Sontag MK, Zhou M, Dasgupta M, Crume T, McLemore M, Galadanci N, Randall E, Steiner N, Brandow AM, Koch K, Field JJ, Hassell K, Snyder AB, Kanter J.

Timeliness of Opioid Administration for Pain in the Emergency Department for Adults with Sickle Cell Disease.
Blood. 2023; 142 (Supplement 1): 3738. Singh A, Brousseau D.C., Osinski K, Brandow A.M.

Evaluating the discriminatory ability of the Sickle Cell Data Collection program's administrative claims case definition in identifying adults with sickle cell disease: validation study.
JMIR Public Health Surveill. 2023;9:e42816. Singh A, Sontag MK, Zhou M, Dasgupta M, Crume T, McLemore M, Galadanci N, Randall E, Steiner N, Brandow AM, Koch K, Field JJ, Hassell K, Snyder AB, Kanter J.

Common data model for sickle cell disease surveillance: considerations and implications.
JAMIA Open. 2023;6(2):ooad036. Smeltzer MP, Reeves SL, Cooper WO, Attell BK, Strouse JJ, Takemoto CM, Kanter J, Latta K, Plaxco AP, Davis RL, Hatch D, Reyes C, Dombkowski K, Snyder A, Paulukonis S, Singh A, Kayle M.

Increasing visibility of sickle cell disease in Indiana: establishing baseline prevalence using integrated data from multiple sources.
Public Health Rep. 2023;333549231170229. Okolo AI, Jacob SA, Dixon BE, Valvi NR, Janson IA, Hardesty BM.

Case ascertainment of sickle cell disease using surveillance or single administrative database case definitions.
Public Health Rep. 2023;333549231166465. Reeves SL, Horiuchi S, Zhou M, Paulukonis S, Snyder A, Wilson-Frederick S, Hulihan M.

COVID-19 infection and outcomes in newborn screening cohorts of sickle cell trait and sickle cell disease in Michigan and Georgia.
J Pediatr Hematol Oncol. 2023;45(4):174-180. Paulukonis ST, Snyder A, Smeltzer MP, Sutaria AN, Hurden I, Latta K, Chennuri S, Vichinsky E, Reeves SL.

Trends in blood transfusion, hydroxyurea use, and iron overload among children with sickle cell disease enrolled in Medicaid, 2004–2019.
Pediatr Blood Cancer. 2023;70(3):e30152. Tang AY, Zhou M, Maillis AN, Lai KW, Lane PA, Snyder AB.

2022

Surveillance for the Rare Condition of Sickle Cell Disease in Wisconsin. WMJ. 2022;121(4):297-300. Singh A, Dasgupta M, Retherford D, Baker M, Hulihan M, Brandow AM.

Telehealth Use Before and During the COVID-19 Pandemic Among Children with Sickle Cell Anemia. Telemed J E Health. 2022;28(8):1166-1171. Reeves SL, Patel PN, Madden B, Ng S, Creary SE, Smith D, Ellimoottil C.

Use of recommended health care measures to prevent selected complications of sickle cell anemia in children and adolescents — Selected U.S. states, 2019.
MMWR Morb Mortal Wkly Rep 2022;71:1241–1246. Schieve LA, Simmons GM, Payne AB, et al.

• Vital Signs: Preventing Sickle Cell Anemia Complications in Children

Prioritizing sickle cell disease.
Pediatrics December 2022;150(6): e2022059491. Lewis L. Hsu, W. Craig Hooper, Laura A. Schieve.

Sickle cell disease among Latinx in California.
PLoS One. 2022;17(10):e0276653. Valle J, Baker JR, Madrigal D, Ferrerosa J, Paulukonis S.

Surveillance for the rare condition of sickle cell disease in Wisconsin.
WMJ. 2022;121(4):297-300. Singh A, Dasgupta M, Retherford D, Baker M, Hulihan M, Brandow AM.

Surveillance for sickle cell disease — Sickle Cell Data Collection program, two states, 2004–2018.
MMWR Surveill Summ 2022;71(No. SS-9):1–18. Snyder AB, Lakshmanan S, Hulihan MM, et al.

COVID-19 and sickle cell disease-related deaths reported in the United States.
Public Health Rep. 2022;137(2):234-238. Payne AB, Schieve LA, Abe K, Hulihan M, Hooper WC, Hsu LL.

Hematologist encounters among Medicaid patients who have sickle cell disease.
Blood Adv. 2022;6(17):5128-5131. Horiuchi SS, Zhou M, Snyder A, Paulukonis ST.

2021

Influenza vaccination rates and hospitalizations among Medicaid enrollees with and without sickle cell disease, 2009-2015.
Pediatr Blood Cancer. 2021;68(12):e29351. Payne AB, Adamkiewicz TV, Grosse SD, Steffens A, Shay DK, Reed C, Schieve LA.

Improving outcomes for patients with sickle cell disease in the United States: making the case for more resources, surveillance, and longitudinal data.
JAMA Health Forum. 2021;2(10):e213467. Kanter J, Meier ER, Hankins JS, Paulukonis ST, Snyder AB.

Hydroxyurea use after transitions of care among young adults with sickle cell disease and Tennessee Medicaid insurance.
JAMA Netw Open. 2021;4(10):e2128971. Mathias JG, Nolan VG, Klesges LM, Badawy SM, Cooper WO, Hankins JS, Smeltzer MP.

Concurrent use of hydroxyurea and deferasirox in Californians with sickle cell disease.
Health Sci Rep. 2021;4(3):e323. Wong TE, Valle J, Paulukonis S.

2020

Coronavirus disease among persons with sickle cell disease, United States, March 20–May 21, 2020.
Emerging Infectious Diseases. 2020. Panepinto JA, Brandow A, Mucalo L, Yusuf F, Singh A, Taylor B, Payne AB, Peacock G, Schieve LA.

Trends in sickle cell disease-related mortality in the United States, 1979–2017.
Annals of Emergency Medicine. 2020;76(3S):S28-S36. Payne AB, Mehal JM, Chapman C, Haberling DL, Richardson LC, Bean CJ, Hooper WC.

Using surveillance to determine the number of individuals with sickle cell disease in California and Georgia, 2005-2016.
Pediatr Hematol Oncol. 2020;1-5. Aluc A, Zhou M, Paulukonis ST, Snyder AB, Wong D, Hulihan MM.

Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.
Pediatr Blood Cancer. 2020;67(5):e28152. Kayle M, Valle J, Paulukonis S, Holl JL, Tanabe P, French DD, Garg R, Liem RI, Badawy SM, Treadwell MJ.

Acute care utilization at end of life in sickle cell disease: Highlighting the need for a palliative approach.
J Palliat Med. 2020;23(1):24-32. Johnston EE, Adesina OO, Alvarez E, Amato H, Paulukonis S, Nichols A, Chamberlain LJ, Bhatia S.

2019

Characterizing complication risk from multisite, intermittent transfusions for the treatment of sickle cell disease.
Pediatr Blood Cancer. 2019;66(10):e27921. Tang A, Branscomb J, Zhou M, Snyder A, Eckman J

Health literacy and knowledge of chronic transfusion therapy in adolescents with sickle cell disease and caregivers.
Pediatr Blood Cancer. 2019;66(7):e27733. Yee MEM, Meyer EK, Fasano, RM, Lane PA, Josephson CD, Brega AG.

Understanding the complications of sickle cell disease.
American Journal of Nursing 2019; 119 (6) 26-35. Tanabe P, Spratling R, Smith D, Grissom P, Hulihan M.

Improving an administrative case definition for longitudinal surveillance of sickle cell disease
Public Health Rep. 2019;134(3):274-281. Snyder AB,Zhou M, Theodore R, Quarmyne MO, Eckman J, Lane PA.

Transfusion service knowledge and immunohaematological practices related to sickle cell disease and thalassemia.
Transfus Med. 2019. Fasano RM, Branscomb J, Lane PA, Josephson CD, Snyder AB, Eckman JR.

Facilitators and barriers to minority blood donations: A systematic review.
Nurs Res. 2019. Spratling R, Lawrence RH.

2018

A strategic planning tool for increasing African American blood donation.
Health Promot Pract. 2018;1524839918775733. Singleton A, Spratling R.

Hemoglobin A clearance in children with sickle cell anemia on chronic transfusion therapy.
Transfusion. 2018. Yee MEM, Josephson CD, Winkler AM, Webb J, Luban NLC, Leong T, Stowell SR, Roback JD, Fasano RM.

2017

CDC Grand Rounds: Improving the lives of persons with sickle cell disease.
MMWR Morb Mortal Wkly Rep. 2017;66(46):1269-1271. Hulihan M, Hassell KL, Raphael JL, Smith-Whitley K, Thorpe P.

Emergency department utilization by Californians with sickle cell disease, 2005-2014.
Pediatr Blood Cancer. 2017;64(6):10.1002/pbc.26390. Paulukonis ST, Feuchtbaum LB, Coates TD, Neumayr LD, Treadwell MJ, Vichinsky EP, Hulihan MM.

Red blood cell minor antigen mismatches during chronic transfusion therapy for sickle cell anemia.
Transfusion. 2017;57(11):2738-2746. Yee MEM, Josephson CD, Winkler AM, Webb J, Luban NLC, Leong T, Stowell SR, Fasano RM.

The accuracy of hospital ICD-9-CM codes for determining sickle cell disease genotype.
J Rare Dis Res Treat. 2017;2(4):39-45. Snyder AB, Lane PA, Zhou M, Paulukonis ST, Hulihan MM.